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From left to right, Ruby, Jilly, and Emma are well prepared to start a new school year with helpful information from their parents for teachers, school staff, and classmates.
It is that time of the year again! School is starting back up for children across the country. ...
Community
If you’re a Rett caregiver or family member, you know how many medical professionals it can ...
Community
Who do you think are the world’s leading experts on Rett Syndrome? Geneticists? ...
Community
If your daughter (or son) is approaching 18 years old, there are a couple of matters that you ...
Community
Last March we announced an ambitious goal at RSRT to raise $33 million over three years to ...
Community
I’m not a big football fan, but I admit I got caught up in the Eagles’ recent win. I grew ...
Community
I’ve always been drawn to human diseases and genetics. When I first really learned genetics ...
Community
I think most of us Rett parents compartmentalize our life events according to “pre-Rett” ...
Community
Like other grandparents who faced a diagnosis of Rett Syndrome, I was initially devastated. My ...
Community
I have a soft spot for Rett grandparents. Having witnessed my own parents come to terms with ...
Community
I told my daughter, Eleanor, the news. I had just put her in bed for the night. Her arms had ...
Community
Hi everyone, so this is my very first blog! Ugh, Rett Syndrome! So after going through ...
Community
I want to join Monica and our trustees and staff in saying how hugely grateful we are at RSRT ...
Community
Rett Syndrome Awareness Month is here! It’s important to spread the word about what Rett is ...
Community
RSRT launched eight years ago yesterday. Anniversaries can be an opportunity to look back at ...
Community
The Rett Syndrome Research Trust is pleased to announce that Brad Zelinger has been elected as ...
Community
Seven years ago, I laid on my bathroom floor and thought about never getting up again. It was ...
Community
We’re tremendously excited by the research progress we’ve achieved through the enthusiastic ...
Community
It started out as a pretty good summer day. Or as good as any day could be that year. I had ...
Community
You know the look….the look that moms of disabled kids exchange when they walk past each ...
Community
In August of 2014, at the age of two, our son Bo was diagnosed with MECP2 Duplication Syndrome. ...
Community
RSRT Trustee, Adrian P. Bird, was elected today to the prestigious National Academy of Sciences ...
Community
Our local coffee shop owner My first-grade teacher Rachel’s high school French teacher Our ...
Community
Over the last few years RSRT has heard from a number of parents who reported their child with ...