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Rett In The News
Rett Syndrome Research Trust
Rett Syndrome Global Registry
Rett In The News
AveXis/Novartis Release Statement on AVXS-201
Our community has been anxiously awaiting news from AveXis/Novartis regarding the start of the ...
August 22, 2019
World-Class Team Takes on Next Gen Gene Therapy
RSRT first started funding gene therapy efforts in 2010 with a collaboration between Gail ...
December 13, 2018
Novartis to Acquire AveXis
AveXis announced today that it has entered into an agreement to be acquired by the ...
April 9, 2018
AveXis Reports on Rett Gene Therapy Program: AVXS-201
AveXis Reports on the Rett Syndrome Gene Therapy Program – Clinical Trial Likely to Start ...
February 28, 2018
Gene Therapy Primer
Gene therapy is the lead program of our three-year strategic plan, Roadmap to a Cure. This ...
May 10, 2017
Roadmap to a Cure FAQ
We’ve tried to anticipate some of the questions that families will have about Roadmap to a ...
March 24, 2017
RSRT Awards $7.5 Million to Research in 2016
RSRT was launched in 2008, in the wake of Adrian Bird’s remarkable reversal experiment. Our ...
March 17, 2017
Gene Editing Shows Potential for Treating Genetic Diseases Like Rett
One of the hottest emerging approaches to altering or correcting defective disease-causing ...
December 6, 2016
Rett Syndrome Awareness Month 2016
Rett Syndrome Awareness Month is here! It’s important to spread the word about what Rett is ...
October 7, 2016
New Trustee Appointed
The Rett Syndrome Research Trust is pleased to announce that Brad Zelinger has been elected as ...
June 13, 2016
Crowdfunding for Rett
We’re tremendously excited by the research progress we’ve achieved through the enthusiastic ...
June 6, 2016
Attacking Rett Where it Lives | More Funding Awarded
Anyone who follows Rett research knows that the devastating disorder is caused by mutations in ...
May 24, 2016
Professor Bird Elected to National Academy of Sciences
RSRT Trustee, Adrian P. Bird, was elected today to the prestigious National Academy of Sciences ...
May 3, 2016
Gene Therapy Might be the Best, and Perhaps Only, Chance at Curing Brain Diseases
Newsweek has published an informative and easy to read article on gene therapy as treatments ...
May 2, 2016
Clarifying the "Vanderbilt Breakthrough Story"
On April 26th, WBRC Fox 6 News covered a story with the headline "Vanderbilt researchers ...
April 29, 2016
“Disease in a Dish” Platform Receives a $1 Million Influx from RSRT
Alysson Muotri has been working on Rett Syndrome for over a decade, first in the laboratory of ...
April 19, 2016
Educating the FDA on Breathing Problems
Breathing issues can be a very debilitating problem for individuals with Rett Syndrome. ...
March 31, 2016
Over the last few years RSRT has heard from a number of parents who reported their child with ...
March 22, 2016
Rett Syndrome Clinic in Atlanta Launches Clinical Trial
Dr. Daniel Tarquinio, the director of the Rett Syndrome Clinic in Atlanta will soon be ...
March 15, 2016
Rett Hand Splints: What's the Verdict?
Many of our children use hand splints to reduce stereotypies, promote proper wrist and finger ...
February 25, 2016
Rett in Review: Crossing Thresholds
Even scientists find it challenging to list and describe all the potential treatment and ...
February 3, 2016
KCC2 and Rett: The Import/Export Business
The recent paper published by scientists at Penn State in collaboration with labs from the UC ...
January 25, 2016
Rett Researchers Gather in Boston
RSRT funds a broad scope of research from gene therapy to clinical trials to basic science. ...
January 5, 2016
MECP2 Consortium Progress Report
The MECP2 Consortium, a unique collaboration comprised of the Adrian Bird, Michael Greenberg ...
December 23, 2015