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Monica Coenraads

Chief Executive Officer
Rett Syndrome Research Trust
Monica Coenraads
If you’re a Rett caregiver or family member, you know how many medical professionals it can ...
Monica Coenraads
News announced by Taysha Gene Therapies late last month brings us one step closer to testing a ...
Monica Coenraads
July 6 was my birthday, which means business as usual. I like it that way -- the fewer ...
Monica Coenraads
The goal of the Rett Syndrome Research Trust (RSRT) is to advance the most promising curative ...
Monica Coenraads
Every question you have ever had about gene replacement for Rett Syndrome is asked and answered ...
Monica Coenraads
MECP2 reactivation is a cornerstone therapeutic strategy at RSRT. The fact that this strategy ...
Monica Coenraads
A key aspect of effective clinical trials is the ability to objectively and accurately measure ...
Monica Coenraads
Dear families and supporters, We want to share with you the update below from Novartis Gene ...
Monica Coenraads
October awareness month is right around the corner. Recognizing that funding drives the crucial ...
Monica Coenraads
A cure for Rett Syndrome. You want it. I want it. More than anything. So how is the Rett ...
Monica Coenraads
Dear families and supporters, We are excited to share the statement below from AveXis/Novartis ...
Monica Coenraads
Dear Fellow Families, The events of the past several months have magnified how small our world ...
Monica Coenraads
I’ll let you in on a secret. I’m not a big fan of Rett awareness month. I think it’s ...
Monica Coenraads
We live in a world of instant access to information. This is true not only for world, national ...
Monica Coenraads
This past Friday started off bright and early with the sound of rushing water in my ...
Monica Coenraads
A recent article entitled “A perspective on “cure” for Rett syndrome” authored by a ...
Monica Coenraads
I’ve blogged about how RSRT solicits and reviews proposals. But what happens once an award is ...
Monica Coenraads
Peer review, it’s a term you’ve probably heard numerous times. But what exactly is it? As ...
Monica Coenraads
Our recent announcement that AveXis is planning to initiate a gene therapy clinical trial ...
Monica Coenraads
Andrew Carnegie, the 19th century business magnate and philanthropist, once said, “It is more ...
Monica Coenraads
I’m a stickler for accuracy. I always have been. So I confess to being a tad uncomfortable ...
Monica Coenraads
Until we know what form the Rett cure will take it’s critical to pursue multiple strategies ...
Monica Coenraads
We’ve known for almost two decades that mutations in the MECP2 gene and its corresponding ...
Monica Coenraads
I think most of us Rett parents compartmentalize our life events according to “pre-Rett” ...