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We just held our Virtual Reverse Rett NYC 2021 event. I’m so grateful to every supporter and ...
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Parents of a child diagnosed with Rett syndrome face all the milestones that parents of a ...
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Everything we do aims to find a cure for Rett syndrome, including providing key resources to ...
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Yesterday was a tough day. The termination of the Novartis Rett gene replacement program, ...
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During Novartis’s quarterly investor call this morning the company informed the public that ...
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There is a great deal of excitement and anticipation surrounding gene replacement therapy in ...
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September 24, 2021 Dear Rett Syndrome Community, During the September 22 educational event on ...
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On September 22, 2021, Taysha Gene Therapies hosted a virtual educational event on Rett ...
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Shape Therapeutics (ShapeTX) is one of the seven biopharmaceutical companies taking aim at the ...
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I remember getting the diagnosis like it was yesterday. My wife Cari and I knew something was ...
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If you’re a Rett caregiver or family member, you know how many medical professionals it can ...
From left to right, Ruby, Jilly, and Emma are well prepared to start a new school year with helpful information from their parents for teachers, school staff, and classmates.
It is that time of the year again! School is starting back up for children across the country. ...
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News announced by Taysha Gene Therapies late last month brings us one step closer to testing a ...
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July 6 was my birthday, which means business as usual. I like it that way -- the fewer ...
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The goal of the Rett Syndrome Research Trust (RSRT) is to advance the most promising curative ...
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Every question you have ever had about gene replacement for Rett Syndrome is asked and answered ...
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MECP2 reactivation is a cornerstone therapeutic strategy at RSRT. The fact that this strategy ...
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The Rett Syndrome Research Trust has awarded $1.1 million dollars to a new collaboration taking ...
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Rett Syndrome is considered a rare disease; yet rare diseases, as a whole, are not rare—they ...
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At the Rett Syndrome Research Trust, we work to drive the development of cures for Rett ...
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A key aspect of effective clinical trials is the ability to objectively and accurately measure ...
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We are aware of concerns about the adenovirus vector COVID-19 vaccine from Johnson & ...
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Dear families and supporters, We want to share with you the update below from Novartis Gene ...
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In 2020, with tremendous thanks to the Rett families that fundraise for us, RSRT successfully ...